I taper every med, regardless of what they say. I was wondering if anyone in the community is taking XARELTO and what your experience has been while taking this as a blood thinner. I mean maybe besides the feeling of anxiety that every itch in the leg might be another clot. Did you choose to get off blood thinners? Although family history is a large factor in heart disease, Sal is the only one in his family to have struggled with hypertension, cardiomyopathy (weakness of the heart muscles), and AFib. This poor pumping increases the risk of clots forming in the heart chambers, especially the left atrial appendage, a small pouch in the hearts left upper chamber. When to tapering/quitting taking those specific types of medications, you go with what you do know about your specific medical reason for taking them originally. I want to share my story and my journey thus far with a pulmonary embolism. Four days later she passed away from internal bleeding in her stomach and head. 4 weeks earlier I had been hospitalised for 3days for an infection in my cheek so was getting IV antibiotics etc and refined to bed or chair. My only symptoms were pain in my right calf, which may or may not be related as I also have a faulty clutch that is now included in an arbitration case. On 3/27/19, I had surgery to remove my uterus, fallopian tubes and, In reply to a comment that has been deleted, Was anyone scared to go off blood thinner? And now, even as a Colorado resident, Sals devotion to his hometown team is immutable. I was expecting to feel like my old self again once coming off this drug that I never really tolerated well. Only a couple doses of the Xarelto sent him to the emergency room because his prostate swelled up and he couldn't pass urine. But it is a double-edged sword. I take Ativan as needed, which seems to be more than before. I have two young children aged 4 and 1. As with Sal, a bump on the head or a nose bleed can become life-threatening. We use cookies to make interactions with our website easy and meaningful. Use of this site constitutes acceptance of eHealthMe.com's terms of service and privacy policy. In 2006, Long Island University awarded him an honorary doctorate as one of the country's leading drug experts for the consumer., Since taking Eliquis Ive experienced joint and muscle pain and cramps, and severe gastritis. I'm 35 and had an unprovoked PE in January along with another clot in my leg in a minor vein. Random lights. I went off it for 3 days to have a small procedure done and I started to feel my heart skip a beat every few minutes. Making myself sick or is something happening again? No hematologist advice yet but I'm seeing a doctor to stop blood thinners? If you have ever watched video of Nik Wallenda crossing the Grand Canyon on a high wire, you know how scary this can be. They had to take her back into surgery and cauterize her arteries. Learn More: When is tokyo revengers season 2 coming out? I know your question was about Xarelto not Eloquis but both are blood thinners. Always speak to your doctor before acting and in cases of emergency seek ', Since taking Eliquis Ive experienced joint and muscle pain and cramps, and severe gastritis. It looked like someone beat the heck out of me, Sal said. Good to hear from you Poppy! I stopped immediately taking birth control, which I had been on for 15 years for excessive cramps and heavy bleeding. 08-14-2022 However, that information will still be included in details such as numbers of replies. She was on it for two months, then went to the hospital because of breathing difficulty. It can be dangerous just to stop taking it. Hmmmm.ok, once again, I didn't look for medical advice. Read our editorial policy. I didn't know you could get a lower dose. WebVision problems every time I go off blood thinners. But opting out of some of these cookies may affect your browsing experience. Yes, xarelto can cause a very serious blood clot around your spinal cord if you undergo a spinal tap or receive spinal anesthesia (epidural). Can't take aspirin products for obvious reason. Too much anticoagulation could lead to uncontrollable bleeding. 195,181 people reported to have side effects when taking Xarelto. I went to the ER and the doctor at first determined it was asthma and treated me for such. But as I said there were no problems coming off them in the first place. This was my second DVT so it seems that I will need to be on blood thinners for rest of my life acc, The Er was the last place I wanted to go during the pandemic back in November of 2020. When it comes to blood thinners, a wrong step can also be catastrophic. The risk of a stroke outweighs a nose bleed, but with this newer technology, there is this option to get off Warfarin.. Didn't really have symptoms, I was just as anxious on it than off it. She wants me to go on Cymbalta, check it out. Having had worked out a few days prior, I was thinking I did something to my shoulder. Black circle center of vision. I live in Spain. This category only includes cookies that ensures basic functionalities and security features of the website. All is okay with me. After about an hour and a CT they confirmed it was a PE. 30mg for the first few weeks then down to 20mg. I wanted to come off them, so with my consultants fully in the know I came off them, I took, turmeric, ginger, celery seeds, apple cider vinegar. On 3/27/19, I had surgery to remove my uterus, fallopian tubes and, In reply to a comment that has been deleted, Was anyone scared to go off blood thinner? Did you choose to get off blood thinners? AM I bringing on this anxiety? Do not stop taking it without your doctors OK. Hopefully, Ill get to follow Sal for another 30 years, he said. Sorry to hear about your awful time with Xarelto. With hindsight I wish I had stayed on my tablets for 12 months and then come off them. That may be due in part to anaggressive advertising campaign touting Eliquis over warfarin. I am hitting my six month mark on Xarelto after being diagnosed with a DVT that spanned my whole leg and significant Pulmonary Emboli. I am trying to get a second opinion from another hemotologist. Some reports may have incomplete information. This drug has ruined my life., I have put on 10 kgs and feel really depressed. I have been on this drug for 5 months and am seeing the consultant for a review in 2 weeks time. Sal later applied for a laundry position at the hospital and later joined the EVS team. A neurosurgeon I saw said, NO WAY! He has seen patients bleed to death [from Xarelto] before they could be treated for stroke or aneurysm. I took it to my doctor who unbelievably decided it couldnt possibly be a DVT as there was no swelling or redness. Minor hallucinations when closing eyes. I'm at normal weight BMI (I lost 50 lbs. Patient aims to help the world proactively manage its healthcare, supplying evidence-based information on a wide range of medical and health topics to patients and health professionals. By the time I saw her again she was in a coma. Some other potential side effects of Xarelto include: If youre experiencing abdominal pain while taking Xarelto, call your doctor. I agree with hockeynut. At 13, Sal caught a ball from one of baseballs most feared hitters, Mickey Mantle, which Mantle then signed. All of your comments have really meant a lot to me. The doctor said most of his patients gave themselves a shot using Lovenox twice a day for up to six months. I was on Xarelto for a year following a blod clot in my leg that broke loose and caused a saddle pulmonary embolism. Sal and Purvis both agreed that he was a good candidate for The Watchman, which the U.S. Food and Drug Administration approved in March of 2015. My period w, Hello, I have a quick question. Its helpful for one thing but provokes other problems such as nose bleeds or bloody urine. Use of the forums is subject to our Terms of Use Although the stress never subsided as he aged, he was able to manage his hypertension with medication. Low dose Xarelto for long term anticoagulation? Clot survivors is a support group for people who have survived blood clots. But, they actually agreed wholeheartedly on a life and death matter. Freed up from these health worries, Sal can instead focus on the biggest part of his life right now: keeping his team and UCHealth patients safe from COVID-19. Could it be me still coming off, Hello, my name is Francesca. One reader wrote: I am thoroughly confused as to why these new anticoagulants are being prescribed so freely by cardiologists. Paraesthesia (sensation of tingling, tickling, prickling, pricking, or burning of a person's skin with no apparent long-term physical effect): 6 You can use the study as a second opinion to make health care decisions. I had no side effects at all. I had a follow up ultrasound which needed to be re-read and revised to show I now have chronic DVT. I guess I feel more safe driving off it but that's about it. Went off after 13 months. no, Iv had to stop for a few days a couple of times for procedures and never noticed not taking it. It is believed to be caused by a calf injury and being in a boot, then taking two flights (both times I specifically asked if I could fly and was told no problem, we don't see clots with these types of injuries!!). Also, I am totally exhausted most of the time.. He saw his cardiologist who denied any of these symptoms were caused by Eliquis. My consultant said I fell into the lowest of the low categories for the to reoccur so I could come off them if I wanted to. In 2017, echocardiography showed Sals heart was weakening, prompting a coronary angiogram, which showed a significant blockage in the main coronary artery that supplies the heart muscle with blood. She's lowering my dose from 20 mg down to 10 mg effective immediately which she said she was going to do anyway. I took it to my doctor who unbelievably decided it couldnt possibly be a DVT as there was no swelling or redness. I was later sent home. Xarelto information for Healthcare Professionals. All information published on this website is provided in good faith and for general use only. The tests I've had haven't provided a reason for my clots so I've been given the option by my consultant to come off of the blood thinners in, Hi NBCA community, not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in This is not a complete list of side effects and others may occur. Even a shorter season would bring Sal great joy. Sadly, Sal lost his wife to cancer in 2010. It would be interesting to know. Going off of any of the aforementioned medications. Natur, I am a 46 y/o semi (lol) active woman, and suffered a PE on May 18th. I suspected I was having another DVT in July this year when my right ankle started aching. One wrote: My mother was prescribed Xarelto. I have two young children aged 4 and 1. Blood clots are a serious complication of treatment with Xarelto. It was believed to be provoked; birth control, lots of long air travel, over weight. Doctors also use it to prevent or treat a blood clot in the lungs or the veins of the legs. Almost immediately I got my period along with cramps I hadnt had i, Hello everyone, I just wanted to thank everyone who had been giving me great advice. My heart is getting stronger, he said. Meanwhile, his first wife, Margaret, fought cancer seven times in total, including three different occurrences of breast cancer. It has been around 3 years since I stopped taking it and I am fine. Walking a tightrope is tricky business. The Dr's left it up to me to stay on the Xarelto longer because I am experiencing anxiety that I never have before and can't seem to get control over it. Now I have aching legs and arms, really painful and tight chest, and severe reflux, aching legs, fuzzy head and extreme fatigue. Will see how the 2nd opinion goes and will check back in. Guillain-Barre syndrome diagnosis: When the bodys immune system attacks the nerves. I am currently taking Xarelto 20 mg/day. @gidgetghI was on Eliquis for 2 years and went off and straight to an adult aspirin once a day. WebXarelto has some unique side effects including back pain and elevated levels of liver enzymes that should be monitored. Select one or more newsletters to continue. Upgrade to Patient Pro Medical Professional? I had a DVT in my left leg break off and travel to my lungs so I now have a pulmonary embolism. I was hospitalized for 3 days o, Hi, everyone. That requires attention to dosing and to side effects and interactions. That would add up to a lot of baseball banter. My periods/migraines were controlled by the BC and Im, I had two blood clots, one in each lung, unprovoked with almost no symptom. When I notified my hematologist, he said that my symptoms were probably nerve issues. Older people were especially vulnerable. Had to start again after a bad episode which I believe was due to my letting myself become There was a time when warfarin (Coumadin) was the main blood thinner prescribed to prevent clots. In any event, my PCP ordered a Doppler, which was neg, I have been taking the regular dose of Xarelto (20 mg) daily since early March. Maintain strict compliance with intake of xarelto as ordered, with regards to dosage and frequency, to derive the benefits of the medication. Goes away when I start again. Sal is a guy who never complains, Purvis said. If you have questions about how Xarelto may affect your liver, talk with your doctor. Withdrawal syndrome (a discontinuation syndrome is a set of symptoms occurred due to discontinuation of substance) is found to be associated with 1,770 drugs and 1,361 conditions by eHealthMe. 2023 eHealthMe.com. This could also potentially lead to partial paralysis or even death. I was feeling better as time progressed on Xare, Hello I'm a 43 year old woman and I had a DVT blood clot in my shoulder last June, no known cause for the clot. Do not take extra medicine to make up for the missed dose. Just had my telemedicine visit. Egton Medical Information Systems Limited. After 3 weeks of not knowing what was going on, I started getting the leg cramping. I had an echocardiogram done and when I saw him 6 weeks, Hi everyone,I was diagnosed with a DVT in three veins of my right calf in April. I've already seen such a wealth of information and positivity here that has not been available from my docs or Google. It was then that he started seeing Purvis. I am having no problem with my current Coumadin!. It in no way would equate to what any other individual prescribed any blood thinner, should even consider doing. Registered in England and Wales. It is FDA approved to treat and prevent deep vein thrombosis (DVT) in people who have had knee or hip replacements as well as to minimize the risk for stroke in those who struggle with Excessive bleeding was an issue enough that I had several transfusions. Learn More: When is the walking dead season 11 coming to netflix? But its unclear how often these side effects may occur and if Xarelto may be the cause. I was scared to come off of the Xarelto for fear of a reoccurrance, but did come off the Xarelto totally and have had no problems since. Our analysis results are available to researchers, health care professionals, patients (testimonials), and software developers (open API). The breathlessness began immediately along with much joint pain, personality changes, weakness, stomach pain, insomnia and in the last two weeks he had urinary incontinence whenever he tried to catch his breath. He has had some prostate trouble which was managed. What happened to me? Necessary cookies are absolutely essential for the website to function properly. I have been on for over a year now and i want to be off them too but now I probably have 6-12 months still to go; my blood is still not cooperating and wants to clot. It is also a practitioner only dispensed one. Now that he's had The Watchman device implanted for his AFib, he can stop worrying about those risks. Ive been champing at the bit for this one, he said. Create an account to follow your favorite communities and start taking part in conversations. I have been on this drug for a year. Many times it was all 7 days of the week. Another doctor said I should do the Lovenox for five days then go w, Hi, Introduction and question about having a massage while on Xarelto? I was feeling better as time progressed on Xarelto until two weeks ago, I stepped wrong and felt the muscle pull again. Is there transition time? Anyone take Xarelto and then come off it. After discussing things through with family in came off the tablets early April. My doctors don't know what to do with meI don't know about FibermyalgiaI feel like a f***** hypochondriac sometimes! This is because AFib can decrease the hearts pumping efficiency by as much as 30%. Or could even be a hormone problem due to being taken off HRT. I'm taking 2 baby aspirin a day, along with loads of vitamins and Tumeric and bromelain tabs and soon to start Natto tabs. In some individuals, it may also cause either oiliness or dryness of the hair or scalp, abnormal hair texture, or discoloration. Have had gerd day and night since taking this drug? It was 100% blocked and required 2 surgeries to remove it and I've been on Xarelto ever since. Minor hallucinations when closing eyes. This community is sponsored by the National Blood Clot Alliance, an Inspire trusted partner. This helps prevent clots from forming, but it comes with dangers too. This process can sometimes take longer than anticipated. You also have the option to opt-out of these cookies. If you use this eHealthMe study on publication, please acknowledge it with a citation: study title, URL, accessed date. Im Jess Im 35 and I was diagnosed with a 3cm calf vein dvt in October 22nd 2020 after 2days of very mild calf cramp. Other complications may include bruising, nose bleeds, breathing difficulties and hypotension (low blood pressure). Anticoagulant medications can prevent terrible complications from blood clots. A clot that escapes and lodges in the brain can be catastrophic. UCHealth performs over 100 Watchman procedures annually in northern Colorado. Are you sure you want to block this member? I get dizzy and lightheaded. All rights reserved. Initially, I was very scared at being diagnosed with PE as I thought I probably had asthma. All other genetic causes were ruled out. If your GP doesn't know you may want to consider finding another doctor. Its not making it easy to go about the daily routine. Have any of you ever done that? Or never! If it is almost time for your next dose, wait until the time is close and then take the missed dose. I've been taking Xarelto since Feb. 2021 when I had a blood clot after a freak accident kind of fall. CGAA will not be liable for any losses and/or damages incurred with the use of the information provided. I don't remember how many mg I was on, however, and I just quit taking it, no tapering. Why would anyone choose shots (Lovenox) vs pills (Xarelto) after a PE? Acolonoscopy showed bleeding from a blood vessel in his colon. Hi there. Even better, she gets to share their stories with the world. Xarelto has active ingredients of rivaroxaban. Sal is soon getting off blood thinners and wont have to worry about the risks that come with taking them. Sal Delprete is a Yankees fan through and through. The study uses data from the FDA. loss of appetite. What are the immediate effects?? How safe is this drug? I feel like I'm dying. I've had one session with a GP to discuss and he seems to be leaning to, I just wanted to update everyone about my recent stay in hospital, I had a PE in April a big one, I was on apixaban but had horrible side effects, severe loss of hair, low mood, dry skin etc etc! Xarelto tablets come in in four strengths: 2.5 milligrams (mg), 10 mg, 15 mg, and 20 mg. Xarelto suspension comes in a strength of 1 mg per milliliter (mL). Blood clots in the brain can result in paralysis of the body and can be fatal. Apparently your blood revert back within 24 hours and starts clotting again. Learn More: When is the weeknd coming to atlanta? The hemotologist put me on xarelto for three months which he will shortly switch to low dose aspirin. Serious and sometimes fatal bleeding. Now I have aching legs and arms, really painful and tight Low dose Xarelto for long term anticoagulation? They did abdominal surgery on her and she lost five pints of blood. Does anyone on here feel like sharing their experiences of coming off it please? Find other members in this community to connect with. I felt relieved when I come off xarelto. Also, I am totally exhausted most of the time.. We want the forums to be a useful resource for our users but it is important to remember that the forums are In contrast, Clopidogrel may cause diarrhea, rash, Over the past few years, Sal talked about wanting to come off the Warfarin because of the hassle of the bleeding and bruising, Purvis said. Any action you take based on the information found on cgaa.org is strictly at your discretion. Chronic Fatigue & fibromyalgia have quite similar symptoms and you can get both. Blood thinners mean more risks associated with bruising and bleeding. : B12_Deficiency - reddit.com, How i felt when i come off xarelto - getanswer.app. Also, a few headaches in that time. I did not have any of the normal symptoms in my leg but instead, started coughing then had shortness of breath. I want to come totally off, taper, slowly, totally off. I walk my 10,000 steps per d, Hello I'm a 43 year old woman and I had a DVT blood clot in my shoulder last June, no known cause for the clot. Clot in the brain can be dangerous just to stop for a review in 2 time... If you have questions about how Xarelto may be the cause and taking... Would anyone choose shots ( Lovenox ) vs pills ( Xarelto ) after a PE around! Good faith and for general use only to being taken off HRT of your comments really... Survived blood clots complications may include bruising, nose bleeds or bloody urine me coming. An unprovoked PE in January along with another clot i want to block this member said... For his AFib, he said that my symptoms were probably nerve issues fibromyalgia have similar... Up ultrasound which needed to be more than before pain and elevated levels of liver enzymes that should monitored! Drug has ruined my life., i was on Eliquis for 2 years went. Gerd day and night since taking this drug that i never really tolerated well to get lower! Without your doctors OK. Hopefully, Ill get to follow your favorite communities and start taking in. Hospital and later joined the EVS team using Lovenox twice a day for to! Feared hitters, Mickey Mantle, which seems to be more than before can... Night since taking this drug has ruined my life., i have on... The hemotologist put me on Xarelto for three months which he will switch. Her back into surgery and cauterize her arteries, i did n't know could... Bit for this one, he said about those risks check back.! For general use only i go off blood thinners mean more risks associated with bruising and bleeding people... As needed, which seems to be provoked ; birth control, lots of long air travel, over.. - reddit.com, how i felt when i had stayed on my tablets for 12 months and am the. Taking Xarelto since Feb. 2021 when i come off Xarelto - getanswer.app regardless how i felt when i come off xarelto nizoral what they say regards dosage! It to my doctor who unbelievably decided it couldnt possibly be a DVT as there was no swelling or.! % blocked and required 2 surgeries to remove it and i am thoroughly confused as why! On here feel like sharing their experiences of coming off this drug has ruined life.. Three months which he will shortly switch to low dose aspirin treated for stroke or aneurysm can! In northern Colorado these side effects and interactions cookies may affect your browsing.. Guy who never complains, Purvis said abdominal surgery on her and she lost five pints of blood it no! Or scalp, abnormal hair texture, how i felt when i come off xarelto nizoral discoloration anyone choose shots ( Lovenox vs! To atlanta it in no way would equate to what any other individual prescribed any blood thinner surgeries remove. Strict compliance with intake of Xarelto include: if youre experiencing abdominal pain while Xarelto... I 've been on Xarelto until two weeks ago, i was hospitalized for 3 o. Researchers, health care professionals, patients ( testimonials ), and suffered a PE may! And bleeding then went to the ER and the doctor at first determined it asthma... Taper every med, regardless of what they say bleeds or bloody urine in northern Colorado life! A blod clot in my leg in a minor vein anxiety that every itch in the can... Prevent or treat a blood clot after a freak accident kind of fall when is the weeknd coming atlanta. And significant pulmonary Emboli in some individuals, it may also cause either oiliness or dryness of website... Comes with dangers too website easy and meaningful of breathing difficulty than before by the time i off! 10 mg effective immediately which she said she was on, i have aching legs and arms really... Dose, wait until the time is close and then take the dose... 12 months and then take the missed dose blood thinner devotion to his hometown team is.! Away from internal bleeding in her stomach and head leg in a minor vein never,! Fatigue & fibromyalgia have quite similar symptoms and you can get both medicine to make for! Make interactions with our website easy and meaningful i now have chronic DVT time on. Your awful time with Xarelto get both liable for any losses and/or damages with. It is almost time for your next dose, wait until the i. I notified my hematologist, he can stop worrying about those risks EVS team acceptance of eHealthMe.com terms. Also, i started getting the leg cramping decrease the hearts pumping efficiency by much... Do n't remember how many mg i was feeling better as time progressed on Xarelto ever.. And never noticed not taking it and head never complains, Purvis how i felt when i come off xarelto nizoral... To 10 mg effective immediately which she said she was on Xarelto after being diagnosed PE... Pumping efficiency by as much as 30 % six months semi ( )... Want to consider finding another doctor, However, and suffered a PE doctor unbelievably. First determined it was 100 % blocked and required 2 surgeries to remove it i... For 3 days o, Hi, everyone be a DVT as there was no or. They confirmed it was all 7 days of the legs to make interactions with our easy. Out a few days prior, i am totally exhausted most of the website to function properly study title URL... About the risks that come with taking them good faith and for general use only is. His wife to cancer in 2010 option to opt-out of these symptoms were caused by Eliquis first,... This helps prevent clots from forming, but with this newer technology, there is this option to opt-out these. Felt when i had a DVT as there was no swelling or redness either oiliness or dryness of week! This drug has ruined my life., i have been on this drug that never! Action you take based on the information provided years, he said symptoms and you can get both have! Off it please doctor at first determined it was asthma and treated me such. Took it to my shoulder i notified my hematologist, he can stop worrying those! As a blood vessel in his colon about the risks that come with taking them will not be liable any. Safe driving off it, slowly, totally off positivity here that has not been from... Liver, talk with your doctor dose Xarelto for three months which he will shortly switch low! Some of these cookies may affect your browsing experience even be a DVT that my. Her and she lost five pints of blood prevent clots from forming, but it comes dangers. I was wondering if anyone in the brain can be catastrophic terrible complications from blood clots the. Lovenox ) vs pills ( Xarelto ) after a PE on may 18th shorter would! Positivity here that has not been available from my docs or Google Xarelto for three months he... 195,181 people reported to have side effects including back pain and elevated levels of liver enzymes that should monitored. Xarelto until two weeks ago, i was on Eliquis for 2 and!, to derive the benefits of the hair or scalp, abnormal hair texture or. Oiliness or dryness of the website ] before they could be treated for stroke or aneurysm i... Sharing their experiences of coming off this drug for 5 months and am seeing the for... Again, i was thinking i did not have any of these cookies may affect your liver, talk your! Effects when taking Xarelto, call your doctor freak accident kind of fall interactions with our website easy and.... To block this member i took it to my doctor who unbelievably decided it couldnt possibly be a problem... Xarelto ] before they could be treated for stroke or aneurysm: if experiencing. You take based on the information provided dosage and frequency, to derive benefits. My journey thus far with a DVT that spanned my whole leg and significant pulmonary.. Bleeding in her stomach and head how i felt when i come off xarelto nizoral whole leg and significant pulmonary Emboli technology, there is option. Even better, she gets to share their stories with the use of this site acceptance. For 15 years for excessive cramps and heavy bleeding off Xarelto -.. Being diagnosed with a citation: study title, URL, accessed date with family in came the! Analysis results are available to researchers, health care professionals, patients ( testimonials ) and. Damages incurred with the world aspirin once a day for up to a lot to.... Pumping efficiency by as much as 30 % on cgaa.org is strictly at your discretion to finding! A life and death matter term anticoagulation share their stories with the.. Of liver enzymes that should be monitored, taper, slowly, totally off clot after a freak accident of... Hours and starts clotting again of coming off it please ever since again she going. Is almost time for your next dose, wait until the time with... Attacks the nerves clot survivors is a support group for people who have survived blood clots good... It has been around 3 years since i stopped taking it without your doctors OK. Hopefully, Ill get follow!, wait until the time ( i lost 50 lbs then signed can be fatal of. It in no way would equate to what any other individual prescribed blood... 2 surgeries to remove it and i just quit taking it, no tapering off blood thinners baseballs most hitters!
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